भिडियो हेर्न तल को बक्समा क्लिक गर्नुहोस

, May 21, 2016 : The childhood stage is considered to be the most beautiful stage of human life where they are allowed to do anything naughty and entertaining. Children love to play in sun, jump, swim in pools and enjoy almost every activities related to games but only togetherly with their friends. But unfortunately Savana Fulkerson is not lucky enough like other kids. When every children loves to play in sunny day and the schorching sun would not bother them at all, Savana is compelled to live inside the darkness of her room even in daylight. She is suffering from a rare skin allergy where she can not bear the sun. If she gets exposed in sunlight then rashes start appearing in her skin and that would burn her a lot. Even ice would not help her to get rid of the burning pain. This symptom was seen on her when she was only four. Her this kind of disorder was not exactly diagnosed unless they consulted to a dermatology of Children Hospital Lifer Dr. Minnelly Luu. It was diagonsed that Savana was suffering from a rare kind of skin disorder known as EPP (Erythropceptic Porphyria). She now is life prisoned to stay in darkness and even at her little age she would understand her status and has compromised with her life. Whenever she needs to go out she has to wear special UV proof dresses. Alike Savana there are many other children who have allergy with sun. Most commonly known disorder is known as XP which could be deadly and can cause cancer. Afamelanotide is the only treatment for this kind of allergy which is even though
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तल को बक्समा क्लिक गर्नुहोस

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